A Complicated Gift
“A Complicated Gift”: Erin Moore knew her children had a 25% chance of having cystic fibrosis and, with the birth of her son 10 years ago, her family saw that statistic come to life. Today, Erin is a leading voice in the space of patient engagement and co-design.
She fights every day to preserve her son’s health, why would she call this disease “a complicated gift?” Listen and find out.
Culture & Leadership | Patient Family & Community Engagement
Culture & Leadership: The Impact of Patients and Families on Decision-Making
By Kelly Foran This is the fourth blog in a series of eight by The Beryl Institute’s Global Patient & Family Advisory Board (GPFAB). The intent of this series is to present our perspective on patients’ and families’ lived experience through each of the strategic lenses of The Beryl Institute’s Experience Framework. The Experience FrameworkLearn more
Patient Family & Community Engagement | Staff & Provider Engagement
See It, Say It, Save It: Empowering Employees to be a Part of the Solution to Patient Belongings
This webinar explores the impact of lost belongings on the patient, their families, and your organization. You will hear best practices for empowering and motivating your staff around the patient belongings process through awareness, education, recognition, and incentive programs. Key learnings will be shared about the See it! Say it! Save it! Program, launched inLearn more
Patient Family & Community Engagement
Patient experiences through head and neck cancer: Information delivery combatting psychological distress
As part of a larger study investigating the utility of electronic decision support tools for patients with head and neck cancer (HNC), this article describes the patient experience of receiving cancer treatment in British Columbia, Canada. It aims to give voice to the patient experience and recommend a model of psychological adjustment for clinicians andLearn more