A Complicated Gift
“A Complicated Gift”: Erin Moore knew her children had a 25% chance of having cystic fibrosis and, with the birth of her son 10 years ago, her family saw that statistic come to life. Today, Erin is a leading voice in the space of patient engagement and co-design.
She fights every day to preserve her son’s health, why would she call this disease “a complicated gift?” Listen and find out.
Related content
-
Patient Family & Community Engagement
Improving Communication: Patient and Family Centered Rounds
Dr. Mikelle Key-Solle, Pediatric Hospitalist, covers five themes physicians should consider when interacting with caregivers of color and non-English-language-preferring families. These principles aim to improve communication during patient- and family-centered rounds at Duke Children’s Hospital and Health Center.
Learn more -
Patient Family & Community Engagement
“You May Not Appreciate This Now, But You May Later”: A Qualitative Analysis of the Impact and Meaning of Legacy Interventions as Defined by Bereaved Parents
The death of a child is a significant event that affects the family system. Families of dying children need comprehensive support to help them cope with their trauma and loss. However, there is little research that examines parental preferences and grieving support needs. This study explored bereaved parent mentors’ perspectives on legacy interventions to identify
Learn more -
Patient Family & Community Engagement
Patient Engagement and Co-creation in Healthcare Services: A Scoping Review
Objective: The objective of this review was to find literature related to the concepts of patient engagement and co-creation in healthcare services and identify models and/or frameworks that combined these concepts. Methods: We developed the eligibility criteria using the Population-Concept-Context framework applicable to studies with population of patients exploring the concepts of engagement and co-creation
Learn more