The critical role of family in patient experience
Published November 12, 2015
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Patient Family & Community Engagement
Navigating Uncertainty: Patient Experiences of BIRADS 0 Mammogram Results
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Objective: Describe experiences of patients receiving BIRADS 0 (inconclusive) mammogram results in electronic health portals. Methods: Recruited eighteen patients who had received BIRADS 0 results via the portal in the last 5 years.Semi-structured interviews yielded qualitative data, analyzed sequentially using the immersion crystallization method to identify content and then iterative coding both individually and in groups. A team
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Patient Family & Community Engagement
From Anticipation to Relief: Anxiety Reduction and Patient Experience as Indicators of Trust During Dental Extractions in Orthodontic Treatment
Published August 6, 2026
Trust is central to healthcare encounters involving fear and uncertainty. This quasi-experimental study evaluated changes in anxiety before and after dental extractions performed during orthodontic treatment planning and examined whether patient experience factors were associated with post-extraction anxiety. Fifty patients aged 11–40 years undergoing fixed orthodontic treatment requiring extraction were recruited consecutively at a tertiary
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Patient Family & Community Engagement
Beyond a Seat at the Table: Building the Infrastructure for True Patient and Family Partnership
Published February 25, 2026

Darcel Jackson, Manager, Patient and Family Centered Care Paige Warner, PFA Engagement Specialist Children’s National Hospital For years, patient and family engagement in healthcare has been framed as offering “a seat at the table.” While well-intended, that language often limits partnership to presence rather than influence. Our experience taught us that families don’t need a
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