Embracing Co-Design: Engaging Patients and Families Related to the Cures Act
Published October 25, 2022
Northwell sought the voices of patients to co-design an updated patient portal in response to the Cures Act.
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Patient Family & Community Engagement
The patient ombudsperson’s experience of patient partnership and mutual understanding of rights
Published May 4, 2025
Mutual understanding between the patient and the healthcare professional can be considered a key factor of a positive patient experience in the care relationship. Mutual understanding can be promoted through patient partnership, which, in this personal and professional narrative, the author (a patient ombudsperson, known as patient ombudsman, and researcher of patient experience) describes as
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Patient Family & Community Engagement
The Art of Diagnosis: How to Actively Participate in Your Healthcare
Published August 8, 2025
Diagnosing illness is one of the most complex and error-prone aspects of healthcare, yet patients are rarely equipped with the knowledge or tools to engage in the process actively. This article demystifies diagnosis by explaining how doctors formulate differential diagnoses, the limitations of medical testing, and the cognitive and systemic factors that contribute to diagnostic
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Infrastructure & Governance | Patient Family & Community Engagement
Starting a Pediatric Parent Advisory Council: Overcoming Adversity
Published May 20, 2025

Creating a Pediatric Parent Advisory Council (PPAC) can be a transformative way to enhance family-centered care. Join us as we share our journey from the early stages of conceptualizing a PPAC, through navigating the challenges of the COVID-19 pandemic, to launching a council that has grown and thrived since August 2021. With 16 active parents
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