Embracing Co-Design: Engaging Patients and Families Related to the Cures Act
Published October 25, 2022
Northwell sought the voices of patients to co-design an updated patient portal in response to the Cures Act.
Related content
-
Infrastructure & Governance | Patient Family & Community Engagement
Building Representative PFACs: From Formation to Sustainment
Published May 12, 2026

This webinar focuses on best practices for developing, implementing, and sustaining Patient and Family Advisory Councils (PFACs) and Patient and Family Advisors (PFAs) that are diverse, representative, and meaningfully integrated into organizational safety work. Discussion will include governance structures, recruitment, inclusion, and strategies for ensuring PFACs influence decision-making rather than operating in isolation. Learning Objectives:
Learn more -
Patient Family & Community Engagement
Patient-Centred Care: An Integrated Bibliometric and Structural Equation Modelling Approach
Published August 6, 2026
This study investigates how communication and service quality in Patient Relationship Management impact patient satisfaction through trust. The literature in this field is predominantly in developed countries, whereas it is scarce in sub-Saharan Africa. Combining bibliometric analysis and structural equation modelling, the study highlights emerging research trends and provides empirical evidence to guide healthcare practitioners,
Learn more -
Patient Family & Community Engagement
A Modern Playbook for Trust Across the Health Ecosystem
Published August 6, 2026
Public trust in health care delivery, public health, and biomedical innovation is at a historic low. While many place the blame on the COVID-19 pandemic and the proliferation of social media, the reality is that distrust is a deeply rooted structural challenge that has plagued the U.S. for centuries. It is tied to historical movements
Learn more