Embracing Co-Design: Engaging Patients and Families Related to the Cures Act
Published October 25, 2022
Northwell sought the voices of patients to co-design an updated patient portal in response to the Cures Act.
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Patient Family & Community Engagement | Staff & Provider Engagement
The Cost of Silence: Addressing Disenfranchised Grief in Healthcare
Published June 23, 2026
11:00 AM PT / 2:00 PM ET / 7:00 PM London – This webinar shines a light on disenfranchised grief, the often-unrecognized loss experienced by both patients and healthcare professionals. Through real-world stories and frontline insights, presenters will explore how acknowledging unseen grief can transform care experiences and strengthen human connection. Participants will learn how
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Patient Family & Community Engagement
Communicating Effectively when Engaging People with Lived Experience in Mental Health and Substance use Health Research: A Qualitative Descriptive Study
Published November 12, 2025
Background. People with lived experience of mental health and/or substance use challenges and families (PWLE/F) are increasingly engaged in research, providing positive impacts. However, effective engagement can be challenging, including ensuring effective communication. This qualitative study sought to understand the communication preferences of PWLE/F who are engaged in mental health and substance use health research.
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Patient Family & Community Engagement
Partnership, Collaboration, and Co-Production to Improve Patient Experience Beyond Conducting Surveys – Lessons from the Quebec Model, Canada Authors
Published August 8, 2025
The objectives of this article are to present how, in the province of Quebec (Canada), healthcare and service partnerships have been implemented, to take stock of the current situation and to suggest ways to continue strengthening the model over the coming years, in Quebec and elsewhere in the world. Methods: Three methods were mobilized: (1) a review
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