Embracing Co-Design: Engaging Patients and Families Related to the Cures Act

Northwell sought the voices of patients to co-design an updated patient portal in response to the Cures Act.
Related content
-
Patient Family & Community Engagement
A case study on the impact of an adapted community jury in shaping the Nutrition Standards for hospital menus in New South Wales Australia
Community juries are a form of deliberative democracy and can engage community groups in decision-making about healthcare and service delivery issues and priorities. They can provide insights and value-based perspectives from community groups and are particularly important in resolving perennial and complex system challenges. One such challenge is nutrition in hospitals–where there is a need
Learn more -
Patient Family & Community Engagement
Efficacy of a Communication Toolkit to Optimize Palliative Care Communication in the Surgical Intensive Unit
Data demonstrates patients benefit from the experience of specialty palliative care providers for advance care planning and prioritizing quality of life, regardless of diagnosis or stage of illness. Despite these benefits, many intensive care units (ICUs) show low utilization of palliative care. The purpose of this study was to evaluate the ability of a bedside
Learn more -
Patient Family & Community Engagement
Building, Evolving, & Elevating PFACs: 8 Lessons Learned on My Journey from Advisor to PFAC Leader
By Vicki Mascareño Nelson My journey to becoming a Patient Experience Partner at the University of Vermont Medical Center (UVM) has been years in the making. It began in 2018 when I became a Patient/Family Advisor on the UVM Children’s Hospital PFAC. My daughter’s experience of living with chronic illnesses led me to want to
Learn more