Inspired and guided by the work of The Beryl Institute GPFAB, PXPF Patient & Family Partnership Workgroup and sparked by community PX chats, this resource center is designed to provide the support and resources needed as members address the engagement/reengagement of Patient and Family Advisors (PFAs) through various ways in their organizations.
The Beryl Institute community calls on health system leaders and organizations to commit to the industry standard of ensuring formal, intentional, and continuous partnerships with patients, families, and care partners.
The more than 60,000 members of The Beryl Institute community, representing the voices of patients, families, care partners, and patient experience practitioners, endorse a holistic approach to partnering with patients, families, and community members through formal Patient and Family Advisor (PFA) programs including councils, focus groups, ad hoc advisors, and co-designers. Beyond their contributions to improvement and co-design, patient and family advisors provide depth and perspective to patient feedback beyond survey results.
Inspired by the work of The Beryl Institute GPFAB, PXPF Patient & Family Partnership Workgroup, and sparked by community PX chats, a series of monthly PX Chats focused on various stages of the PFA/PFAC engagement have been scheduled.
Join The Beryl Institute community for an opportunity to connect with your peers on the support and resources needed to address efforts around new and getting started with PFAs and PFACs in their organizations.
Providing a supportive space for patients, families and care partners.
Fundamental to all we do at The Beryl Institute is understanding, supporting and acting on the lived experience of those receiving care. In partnership with our Global Patient and Family Advisory Board, we offer this community as a place for Patient and Family Advisors (PFAs), patients and care partners, defined as a patient’s circle of support, to make connections and find resources curated and created by their peers.
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Learn the concrete strategies to design, implement and sustain an effective Patient/Family Advisory Council (PFAC) Program.
Learn strategies for creating a PFA co-design program that enables patients and families to participate as
