Engaging and Reengaging Patient & Family Advisors (PFAs)
Inspired and guided by the work of The Beryl Institute GPFAB, PXPF Patient & Family Partnership Workgroup and sparked by community PX chats, this resource center is designed to provide the support and resources needed as members address the engagement/reengagement of Patient and Family Advisors (PFAs) through various ways in their organizations.
The value of patient and family partnerships
The Beryl Institute community calls on health system leaders and organizations to commit to the industry standard of ensuring formal, intentional, and continuous partnerships with patients, families, and care partners.
The more than 60,000 members of The Beryl Institute community, representing the voices of patients, families, care partners, and patient experience practitioners, endorse a holistic approach to partnering with patients, families, and community members through formal Patient and Family Advisor (PFA) programs including councils, focus groups, ad hoc advisors, and co-designers. Beyond their contributions to improvement and co-design, patient and family advisors provide depth and perspective to patient feedback beyond survey results.
PFAC Series
Join us for a three-part interactive virtual series designed to help healthcare organizations start, strengthen, and sustain Patient and Family Advisory Councils (PFACs) that truly make an impact.
Whether you are launching your first PFAC, breathing new life into an existing one, or ensuring long-term success, these sessions will equip you with practical strategies, real-world examples, and expert insights. As an added benefit to our US members, helping you adhere to new CMS attestations in domain 5 regarding PFACs .
Each part of the series will feature a webinar/panel discussion with experienced leaders and advisors, followed by an engaging PX Chat for open conversation, peer sharing, and actionable takeaways.
Learn MorePatient and Care Partner Community
Providing a supportive space for patients, families and care partners.
Fundamental to all we do at The Beryl Institute is understanding, supporting and acting on the lived experience of those receiving care. In partnership with our Global Patient and Family Advisory Board, we offer this community as a place for Patient and Family Advisors (PFAs), patients and care partners, defined as a patient’s circle of support, to make connections and find resources curated and created by their peers.
Learn MoreRecommended Resources
Starting a Pediatric Parent Advisory Council: Overcoming Adversity
Creating a Pediatric Parent Advisory Council (PPAC) can be a transformative way to enhance family-centered care.
Building, Evolving, & Elevating PFACs: 8 Lessons Learned on My Journey from Advisor to PFAC Leader
By Vicki Mascareño Nelson My journey to becoming a Patient Experience Partner at the University of
Advancing PFAC Initiatives, Effectiveness & Visibility Through Strategic Planning & Annual Assessment
A senior co-chair of the Family Advisory Council at Boston Children’s Hospital shares how a mission
The intersection of diversity, equity, and inclusion with pediatric Patient and Family Advisory Councils
The Power of PFAs: Patient Voices Can Drive Change
If your organization is looking to build or rebuild a Patient and Family Advisor Program, this
PFAC Panels for Maximum Patient Participation
Patient and Family Advisory Councils (PFACs) provide essential insights for enhancing patient experience metrics. However, challenges
Building & Sustaining an Effective PFAC
Whether you are building your first PFAC or wanting to sustain an existing one, this learning
The tensions between healthcare providers and patient and family advisory committees (PFACs): A comparative health system analysis between England and Ontario
There has been a proliferation of patient engagement (PE) in healthcare activities. However, the concept of
Invite and Activate Partnership
Explore the Second aim in the Care Teams segment of The New Existence: Invite and Activate
PFACs in 2024: Renew, Restore, and Revitalize for a Patient-Centric Future
By Deborah Ventz-Migneco Healthcare institutions, recognizing the pivotal role of Patient Family Advisory Committees (PFACs), understand
Advanced Approaches to Patient and Family Council Advisor Engagement: Partnering with Healthcare Providers
Hear an overview of PFA engagement strategies employed by top PFE-performing organizations across the country.
Preparing Members of a Patient and Family Advisory Council
This training is designed for those who have already built a solid structure for PFA engagement
Fundamentals of Planning and Launching a Patient and Family Advisory Council
Learn the concrete strategies to design, implement and sustain an effective Patient/Family Advisory Council (PFAC) Program.
Reimagine Design Lab: A PFA Co-design Program
Learn strategies for creating a PFA co-design program that enables patients and families to participate as