We Are Not Visitors: Working Together with Family Caregivers and Care Partners

The patient experience is often different from the family or care partner experience. The Beryl Institute’s Global Patient and Family Advisory Board acknowledges this in their guidebook, “We are not visitors: Working together with family caregivers and care partners.” This guide for providers, care partners, policymakers and researchers is the foundation for this webinar’s panel discussion on what matters most to family members and care partners. With all that we are facing in healthcare today, there is no more important moment to stop and reflect on how we can re-think and rebuild relationships with patients’ loved ones.
Isabela Castro (Board Co-Chair), PX and QI Consultant, Rede Dor Sao Luis, Rio de Janeiro, Brazil
Tony Serge (Board Co-Chair), Patient Experience Advisor and Former PFAC Co-Chair, Groton, MA
Jeff Cousins, Family-Centered Care Consultant, AdventHealth for Children, Orlando, FL
Sydney Graham, Engagement Specialist and Educator, Ontario Family Caregiver Advisory Network, Board Member, Toronto, Canada
Cristina Serrao, Lived Experience Ambassador (Patient Experience Professional Ambassador Fellow), Experience of Care, NHS England and NHS Improvement
MaryAnne Sterling, EVP, Caregiver Experience, Livpact, Denver, CO
Related content
-
Patient Family & Community Engagement
Patient Experience (PX) Giants: Pioneers and the Path Forward
This commentary pays tribute to the foundational figures in patient experience (PX) scholarship, acknowledging the “PX Giants” whose contributions have established and expanded the field’s core principles. Building upon the analysis in Foundational PX, which identified highly cited works, this piece honors individual contributors who have contributed to the scholarly foundation of PX. It highlights
Learn more -
Patient Family & Community Engagement | Quality & Clinical Excellence
Our Journey to Improving the Experience of Patients 65+
Join us for a panel discussion on enhancing patient experience for patients 65 and older. Experts will explore key population statistics, care challenges, and insights from consumer feedback to better understand patient needs. Learn strategies to improve communication clarity and address What Matters Most at every stage of care. Panelists will share lessons from a
Learn more -
Patient Family & Community Engagement
Patient Perspective on Health Care Utilization at Two Free Clinics – A Qualitative Study
Millions of uninsured Americans access health care through free clinics, but their experience with the medical system is understudied. This study sought to understand patterns in free clinic patients’ experience with healthcare utilization through qualitative and descriptive analyses. Data were collected through face-to-face, open-ended interviews at two free clinics in an urban Florida community. The
Learn more