We Are Not Visitors: Working Together with Family Caregivers and Care Partners

Isabela Castro (Board Co-Chair), PX and QI Consultant, Rede Dor Sao Luis, Rio de Janeiro, Brazil
Tony Serge (Board Co-Chair), Patient Experience Advisor and Former PFAC Co-Chair, Groton, MA
Jeff Cousins, Family-Centered Care Consultant, AdventHealth for Children, Orlando, FL
Sydney Graham, Engagement Specialist and Educator, Ontario Family Caregiver Advisory Network, Board Member, Toronto, Canada
Cristina Serrao, Lived Experience Ambassador (Patient Experience Professional Ambassador Fellow), Experience of Care, NHS England and NHS Improvement
MaryAnne Sterling, EVP, Caregiver Experience, Livpact, Denver, CO

The patient experience is often different from the family or care partner experience. The Beryl Institute’s Global Patient and Family Advisory Board acknowledges this in their guidebook, “We are not visitors: Working together with family caregivers and care partners.” This guide for providers, care partners, policymakers and researchers is the foundation for this webinar’s panel discussion on what matters most to family members and care partners. With all that we are facing in healthcare today, there is no more important moment to stop and reflect on how we can re-think and rebuild relationships with patients’ loved ones.