The journey from provider to patient: Lessons learned
Published August 2, 2023
The lens through which one experiences a health crisis is influenced by their personal beliefs and experiences as well as by their professional training and circumstances. Parotid (salivary) gland tumors are rare. Having more than one parotid tumor is rarer still. My experience as a clinician and researcher who was diagnosed with two parotid gland tumors was influenced by my life experiences and my professional background. This affected my reaction to the situation and the questions I asked. It also affected my expectations of my providers. This is a reflection on my six-plus-year journey and the lessons learned, both personally and professionally. The journey will be a lifelong one, hopefully full of promise and health.
Related content
-
Infrastructure & Governance | Patient Family & Community Engagement
Building Representative PFACs: From Formation to Sustainment
Published May 12, 2026

2pm ET / 1pm CT / 12pm MT / 11am PT – This webinar focuses on best practices for developing, implementing, and sustaining Patient and Family Advisory Councils (PFACs) and Patient and Family Advisors (PFAs) that are diverse, representative, and meaningfully integrated into organizational safety work. Discussion will include governance structures, recruitment, inclusion, and strategies
Learn more -
Culture & Leadership | Patient Family & Community Engagement
Ambulatory Care Community Connection Call – Rounding Best Practices
Published October 29, 2025
While rounding is a well-established practice in acute care, ambulatory leaders continue to voice the need for similar approaches in outpatient settings. Rounding, whether with patients, staff, or both, can play a vital role in improving communication, engagement, and overall experience. Join the Ambulatory Care Community for a conversation on current rounding practices in ambulatory
Learn more -
Patient Family & Community Engagement
PFAC Series – Webinar/Panel: Sustaining & Growing a PFAC
Published November 21, 2025
Explore approaches to keep your PFAC thriving over time, expand its influence, and ensure it remains a vital voice in shaping care experiences. Whether you are launching your first PFAC, breathing new life into an existing one, or ensuring long-term success, these sessions will equip you with practical strategies, real-world examples, and expert insights. As
Learn more