Elevating the Unimaginable Experience: A Multidisciplinary Initiative to Improve Pediatric End-of-Life Care

Jessika Boles, PhD, CCLS, Child Life Team Lead, Monroe Carell Jr. Children’s Hospital at Vanderbilt
Anne Duplechain, MEd, Child Life Specialist, Monroe Carell Jr. Children’s Hospital at Vanderbilt
Camille Fraser, MS, CCLS, Child Life Specialist II, Monroe Carell Jr. Children’s Hospital at Vanderbilt
Maile Jones, MEd, CIMI, Graduate Research Contractor, Vanderbilt University
Katie Smith, Bereaved Parent Advisor, Monroe Carell Jr. Children’s Hospital at Vanderbilt
Millions of children die each year – most of whom are touched by healthcare providers in traditional hospital settings or home-health agencies. This webinar reviews current findings on the experiences of bereaved families, positioned alongside institutional practices reported by healthcare providers, and first-person perspectives from a bereaved parent advisor. Participants will explore the development of a hospital-wide bereavement committee to implement and improve end-of-life services in a pediatric hospital i%MCEPASTEBIN%n collaboration with hospital leadership, front-line staff, bereaved parents, and community partners. Lastly, attendees will review the achievements of this committee while highlighting the importance of collaboration between bereaved families and providers to positively impact the patient experience.
Related content
-
Patient Family & Community Engagement
Post-Pandemic Needs of Unpaid Family and Friend Caregivers to Effectively Continue Caregiving Duties in one Northern Ontario Health Authority
The Covid-19 pandemic had a significant impact on the support networks for older adults and caregivers as health and social care systems were forced to dramatically change the ways patients and clients interacted with providers, services, and programs. In Northern Ontario, caregivers are older, caring in more intense situations, more likely to be caring for
Learn more -
Patient Family & Community Engagement
PX Chat on PFA/PFACS: Revitalizing/Rebuilding (April 9, 2025)
12pm ET / 11am CT / 10am MT / 9am PT – Join The Beryl Institute community for an opportunity to connect with your peers on the support and resources needed to address efforts around revitalizing and rebuilding PFAs and PFACs in their organizations. Breakout discussion groups allow you to share your challenges, celebrate your
Learn more -
Environment & Hospitality | Patient Family & Community Engagement
Designing for Pediatric Patient Experience: Expert Insights and Innovations in the Healthcare Built Environment
Incorporating patient-centered and participatory design into healthcare environments is a key strategy for creating spaces that are both supportive and functional. Engaging patients and their families in the design process ensures that these environments meet their specific needs and preferences, ultimately leading to better patient outcomes and experiences. This report shares the essential elements related
Learn more