Developing approaches to the collection and use of evidence of patient experience below the level of national surveys

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Patient Family & Community Engagement
Hope for Healthcare
Members of The Beryl Institute’s Global Patient and Family Advisory Board wish you happy holidays. As 2024 draws to a close, we asked our members to jot down their hopes for healthcare as we welcome the upcoming new year. Tony Serge: My hope for healthcare is for leadership, providers, and staff to work together with
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Patient Family & Community Engagement
“You May Not Appreciate This Now, But You May Later”: A Qualitative Analysis of the Impact and Meaning of Legacy Interventions as Defined by Bereaved Parents
The death of a child is a significant event that affects the family system. Families of dying children need comprehensive support to help them cope with their trauma and loss. However, there is little research that examines parental preferences and grieving support needs. This study explored bereaved parent mentors’ perspectives on legacy interventions to identify
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Patient Family & Community Engagement
Family Support Liaisons: Improving Experience in the ED
By Lani Knutson and Daniela Milea Children’s Wisconsin’s Emergency Department (ED) was confronted with two pressing challenges: a declining Net Promoter Score (NPS) and a significant surge in patient volume. A review of post-visit survey data revealed that 56% of negative comments over a three-month period were directly related to concerns about wait times and
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