Integrating the patient and caregiver voice in the context of pediatric, adolescent, and young adult care: A family-centered approach

Part of the team: Effecting change and sharing power in healthcare settings

In 2019, we, as a group of patients and researchers, were invited to rethink how the executive board received and responded to patient stories at a specific NHS hospital trust in the UK. Through an iterative series of meetings, we were able to co-identify common concerns and together develop a distinctive narrative framework for effecting