Cards from the community: Engagement of the local community to enhance patient and staff experience during the COVID-19 pandemic
Published August 5, 2020
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Patient Family & Community Engagement
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Patient and caregiver engagement is a paramount element to ensure the voice of lived experience is integrated and prioritized in research. However, what it looks like to actually participate in authentic patient and caregiver engagement can be challenging without understanding the experience of our patient and caregiver partners. I had the honour of interviewing a
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Infrastructure & Governance | Patient Family & Community Engagement
Starting a Pediatric Parent Advisory Council: Overcoming Adversity
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Creating a Pediatric Parent Advisory Council (PPAC) can be a transformative way to enhance family-centered care. Join us as we share our journey from the early stages of conceptualizing a PPAC, through navigating the challenges of the COVID-19 pandemic, to launching a council that has grown and thrived since August 2021. With 16 active parents
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Patient Family & Community Engagement
My Life, My Story and Life Recovery among Veterans with Substance Use Problems
Published May 5, 2025
The United States Veterans Health Administration My Life, My Story (MLMS) program is a patient-centered care intervention where veterans are interviewed about their life story and may grant permission to include it in their electronic health record (EHR). Our purpose was to focus on a sample of MLMS narratives from veterans with self-disclosed substance use
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