Patient Family & Community Engagement

Flattening the curve of distress: A public-facing webinar for psychoeducation during COVID-19

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Patient Family & Community Engagement

PX Chat on PFA/PFACS: New/Getting Started (February 5, 2025)

12pm ET / 11am CT / 10am MT / 9am PT – Join The Beryl Institute community for an opportunity to connect with your peers on the support and resources needed to address efforts around new and getting started with PFAs and PFACs in their organizations. Breakout discussion groups allow you to share your challenges,
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Patient Family & Community Engagement

Black Voices On Gynecologic Cancer: Understanding Experiences (BVOGUE)

The voices of Black patient advocates are often absent from research studies. By centering these voices, new strategies can be identified to address and positively impact disparities across the clinical care spectrum, from diagnosis to survivorship. The study aims to identify common and unique experiences of racism and bias among Black patients with gynecologic cancer.
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Patient Family & Community Engagement

Lived Experiences of Cancer Patients Who Chose to Stop Receiving Treatment

The study aimed to understand the lived experience of cancer patients who abandon treatment. Four semi-structured interviews were conducted, and the data was examined using interpretative phenomenological analysis. It resulted in four superordinate themes: (i) ‘Lack of knowledge about cancer’ dealt with patients’ knowledge and perceptions about their cancer. (ii) ‘Hopelessness with oneself and God.’
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