The power of patient ownership: The path from engagement to equity
Published April 29, 2015
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Patient Family & Community Engagement
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What follows is based on the interweaving of three points of view each of which contributes to an understanding of the experience of living with Hepatitis B: (i) as the mother of a daughter who was diagnosed with HBV at 5 months and who still, at age 22, carries traces of the surface antigen in
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Patient Family & Community Engagement
Communicating Effectively when Engaging People with Lived Experience in Mental Health and Substance use Health Research: A Qualitative Descriptive Study
Published November 12, 2025
Background. People with lived experience of mental health and/or substance use challenges and families (PWLE/F) are increasingly engaged in research, providing positive impacts. However, effective engagement can be challenging, including ensuring effective communication. This qualitative study sought to understand the communication preferences of PWLE/F who are engaged in mental health and substance use health research.
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Patient Family & Community Engagement
PFAC Series – Webinar/Panel: Starting a PFAC
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Learn the foundational steps to create a strong and effective PFAC, from defining purpose and recruiting members to setting up structures for meaningful collaboration. Join us for a three-part interactive virtual series designed to help healthcare organizations start, strengthen, and sustain Patient and Family Advisory Councils (PFACs) that truly make an impact. Whether you are launching your
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