Rare and undiagnosed: Daunting challenges for patients, doctors, and researchers alike
Related content
-
Patient Family & Community EngagementCancer Partnerships Hub (CPH) Model: Implementing an Organizational Innovation to Enhance Engagement of Patient-Partner in Cancer Care Services
Patient partnership is rapidly becoming a cornerstone of effective care, with healthcare professionals recognizing the immense value of collaboration. This case study delves into the innovative Cancer Partnership Hub (CPH) model implemented at the Integrated University Health and Social Services Center of East Montreal Island (CIUSSS-EMTL) in Quebec, Canada. The CPH model exemplifies the integration
Learn more -
Patient Family & Community Engagement
Voices From the Journey: Exploring Rehabilitation Experience of Individuals with Disabilities in a South African Province
Background: Globally, 16% of the population is affected by disabilities, with increasing prevalence due to non-communicable diseases and longer lifespans. This group often faces shorter lifespans, poorer health, and greater challenges than non-disabled peers. Rehabilitation services are essential for improving independence, health, and quality of life by facilitating participation in education, work, and social roles. However,
Learn more -
Innovation & Technology | Patient Family & Community EngagementBuilding Trust in Healthcare: Insights from UAB Medicine’s Humanistic Care Study
Join Chris Brainard, Associate Vice President at UAB Medicine, and Amber Maraccini, VP of Healthcare Executive Advisory at Medallia, for a fireside chat on UAB’s innovative strategies to build trust in patient care. Explore how provider behaviors—like listening patiently and showing empathy—improve trust, outcomes, and patient experiences. Learn about the Medallia-Arnold P. Gold Foundation Humanism
Learn more
Ask questions, share insights and connect with other experience leaders.
PX ConnectBecome a member for access to this resource and more:
- Live and On-demand Webinars and Connection Calls
- PX Papers, Case Studies and Research Reports
- PX Connect Online Community
- Discounts on Learning Programs and Events
Become a member for access to this resource and more:
- Live and On-demand Webinars and Connection Calls
- PX Papers, Case Studies and Research Reports
- PX Connect Online Community
- Discounts on Learning Programs and Events
Rare and undiagnosed: Daunting challenges for patients, doctors, and researchers alike
Access Now