Insights from individuals with chronic conditions in the context of COVID-19
Published August 5, 2020
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Patient Family & Community Engagement
Teen Volunteers are Shaping the Human Experience in Healthcare
Published July 1, 2026
This blog is part of a series on Teen/Youth Volunteer Programs in healthcare. See links at the bottom for other resources. By Jill Hilliard, Volunteer Services Coordinator Family Partners and Support Group Le Bonheur Children’s Hospital Why Teen Voices Matter “I spent my 16th birthday in a hospital room. I remember scrolling through photos of my
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Patient Family & Community Engagement
Navigating Uncertainty: Patient Experiences of BIRADS 0 Mammogram Results
Published August 6, 2026
Objective: Describe experiences of patients receiving BIRADS 0 (inconclusive) mammogram results in electronic health portals. Methods: Recruited eighteen patients who had received BIRADS 0 results via the portal in the last 5 years.Semi-structured interviews yielded qualitative data, analyzed sequentially using the immersion crystallization method to identify content and then iterative coding both individually and in groups. A team
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Patient Family & Community Engagement
Co-Designing Trust: Patient Experience, Relationships, and the Design of Care
Published August 6, 2026
Trust can have a positive or negative impact on patients, families, and community healthcare experience. Although important, it is often treated as something soft and intangible rather than something intentionally measured and designed. Currently, healthcare organizations collect and report patient experience data related to communication, courtesy, respect, and responsiveness. But these measures do not capture
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