Enlisting Patient and Family Advisors
Published June 28, 2016
Bernard Roberson, Administrative Director, Family Services Development, Georgia Regents University and Health System, identifies a variety of ways to recruit patient and family advisors as part of the healthcare team.
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Patient Family & Community Engagement
Leveraging PFACs to Strengthen Emergency Department Care
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This webinar will describe how Mount Sinai’s Department of Emergency Medicine conceived, launched, and sustained a system-wide, Emergency Department–focused Patient and Family Advisory Council (PFAC). We will explore how the PFAC’s work moved beyond the traditional “PX silo” to influence ED operations, quality, research, digital tool development, and medical education. The session will highlight the
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Patient Family & Community Engagement
Secondary Infertility: A Personal Story of Loss and Grief
Published August 6, 2026
An increasing number of people worldwide are experiencing fertility and this trend is reflected in the data from the United Kingdom. However, most research focuses on the experiences of women and so the male perspective is largely missing from the literature. This narrative is an account of my personal journey of secondary infertility. Presenting a
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Patient Family & Community Engagement
From Drifting to Anchored: How Online Health Communities Can Transform Care for Complex Chronic Illness
Published August 6, 2026
This personal narrative recounts a 25-year diagnostic odyssey with Ehlers-Danlos syndrome, defined by medical fragmentation, dismissed symptoms, and profound isolation. It illustrates how Online Health Communities (OHCs) bridged the chasm between lived experience and a clinical system ill-equipped for complex chronic illness. For patients like me, these digital forums provide the peer validation, practical knowledge,
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Become a member for access to this resource and more:
- Live and On-demand Webinars and Connection Calls
- PX Papers, Case Studies and Research Reports
- PX Connect Online Community
- Discounts on Learning Programs and Events