A daughter’s frustration with the dearth of patient- and family-centered care

Part of the team: Effecting change and sharing power in healthcare settings

In 2019, we, as a group of patients and researchers, were invited to rethink how the executive board received and responded to patient stories at a specific NHS hospital trust in the UK. Through an iterative series of meetings, we were able to co-identify common concerns and together develop a distinctive narrative framework for effecting