PXJ Article
Showing 1–16 of 540 results
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Policy & Measurement‘First, do no harm’: shifting the paradigm towards a culture of health
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Quality & Clinical Excellence‘Making it Meaningful’: Co-designing an intervention to improve medication safety for people from culturally and linguistically diverse backgrounds accessing cancer services.
This study reports on the process of using an adapted Experienced-Based Co-Design (EBCD) conducted with culturally and linguistically diverse (CALD) consumers and cancer service staff to co-design the novel ‘Making it Meaningful’(MiM) instrument at a cancer service in Australia. Multi-source experiential and contextual information was gathered in phase 1 of the co-design and this evidence,
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Patient Family & Community Engagement“Working the system”: The experience of being a primary care patient
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Innovation & Technology“Anyone can co-design?”: A case study synthesis of six experience-based co-design (EBCD) projects for healthcare systems improvement in New South Wales, Australia
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Patient Family & Community Engagement“Can I still get a tattoo?” Patients’ experiences across the clinical trajectory for metastatic melanoma: a dynamic narrative model of patient journey
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Policy & Measurement
“Feedback is indeed a dainty dish to set before the Trust”: Comparing how online patient feedback is responded to and used across three hospital Trusts in England
Patients are increasingly reporting about their healthcare experiences in an unsolicited manner online. This emerging resource may offer valuable opportunities for organisational learning. Our study aimed to compare how online patient feedback was responded to and used for improvement in three hospital Trusts. Ethnographic data were collected across three hospital Trusts in England, recruited according
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Patient Family & Community Engagement“Not Your Father’s Heart”: How Healthcare Discrimination for Neurodivergent Patients Taught Me About the Human Experience
It is easy to assume all patients who come into a hospital for acute crisis care have a clear understanding of how their experience will be facilitated. When a patient is neurodivergent, they cannot always agree to needed intervention. This is exacerbated by the “poor timing” of questions portrayed to impact the critical care received,
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Environment & Hospitality“Quiet at Night”: Reduced overnight vital sign monitoring linked to both safety and improvements in patients’ perception of hospital sleep quality
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Environment & Hospitality“We were learning together and it felt good that way.” A case study of a participatory group music program for cancer patients
Though there are similarities to music therapy, the field of community music in healthcare, while in its infancy, is steadily growing. This case study explored how semi-formal, active music-making can play a role in illness and recovery and provide patients with a sense of voice, connection, and community, and the efficacy of community music programming
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Innovation & Technology
“What Matters to You?”: A pilot project for implementing patient-centered care
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Patient Family & Community Engagement“You May Not Appreciate This Now, But You May Later”: A Qualitative Analysis of the Impact and Meaning of Legacy Interventions as Defined by Bereaved Parents
The death of a child is a significant event that affects the family system. Families of dying children need comprehensive support to help them cope with their trauma and loss. However, there is little research that examines parental preferences and grieving support needs. This study explored bereaved parent mentors’ perspectives on legacy interventions to identify
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Culture & LeadershipA call to action for human experience
As we open the 8th volume of Patient Experience Journal (PXJ), we all stand in a world much different than we did just a year ago. A year ago we were in the height of crisis, facing unknowns and uncertainty. We didn’t know if we were tackling an issue that was weeks, months or years
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Culture & LeadershipA call to excellence in patient experience
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Environment & Hospitality
A case study of the patient wait experience in an emergency department with therapy dogs
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Patient Family & Community Engagement
A case study on the impact of an adapted community jury in shaping the Nutrition Standards for hospital menus in New South Wales Australia
Community juries are a form of deliberative democracy and can engage community groups in decision-making about healthcare and service delivery issues and priorities. They can provide insights and value-based perspectives from community groups and are particularly important in resolving perennial and complex system challenges. One such challenge is nutrition in hospitals–where there is a need
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A closer look at the association between African American men’s perceptions of healthcare providers’ cultural sensitivity and hypertension
African Americans, specifically African American men, continue to have a substantially higher rate of hypertension and lower life expectancy than other racial and ethnic groups. This has been linked to poor interactions with health care providers. The purpose of this study was to examine the association between African American men’s perceptions of health care providers’
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