“Can I still get a tattoo?” Patients’ experiences across the clinical trajectory for metastatic melanoma: a dynamic narrative model of patient journey
Published June 26, 2019
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Background. People with lived experience of mental health and/or substance use challenges and families (PWLE/F) are increasingly engaged in research, providing positive impacts. However, effective engagement can be challenging, including ensuring effective communication. This qualitative study sought to understand the communication preferences of PWLE/F who are engaged in mental health and substance use health research.
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Patient Family & Community Engagement
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This webinar will describe how Mount Sinai’s Department of Emergency Medicine conceived, launched, and sustained a system-wide, Emergency Department–focused Patient and Family Advisory Council (PFAC). We will explore how the PFAC’s work moved beyond the traditional “PX silo” to influence ED operations, quality, research, digital tool development, and medical education. The session will highlight the
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Patient Family & Community Engagement
“Psychosocial Dimensions of Living with Hep B: Notes from the Field The Lived Experience of a Mother Raising a Daughter with Hepatitis B”
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What follows is based on the interweaving of three points of view each of which contributes to an understanding of the experience of living with Hepatitis B: (i) as the mother of a daughter who was diagnosed with HBV at 5 months and who still, at age 22, carries traces of the surface antigen in
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