We Are Not Visitors: Working Together with Family Caregivers and Care Partners

The patient experience is often different from the family or care partner experience. The Beryl Institute’s Global Patient and Family Advisory Board acknowledges this in their guidebook, “We are not visitors: Working together with family caregivers and care partners.” This guide for providers, care partners, policymakers and researchers is the foundation for this webinar’s panel discussion on what matters most to family members and care partners. With all that we are facing in healthcare today, there is no more important moment to stop and reflect on how we can re-think and rebuild relationships with patients’ loved ones.
Isabela Castro (Board Co-Chair), PX and QI Consultant, Rede Dor Sao Luis, Rio de Janeiro, Brazil
Tony Serge (Board Co-Chair), Patient Experience Advisor and Former PFAC Co-Chair, Groton, MA
Jeff Cousins, Family-Centered Care Consultant, AdventHealth for Children, Orlando, FL
Sydney Graham, Engagement Specialist and Educator, Ontario Family Caregiver Advisory Network, Board Member, Toronto, Canada
Cristina Serrao, Lived Experience Ambassador (Patient Experience Professional Ambassador Fellow), Experience of Care, NHS England and NHS Improvement
MaryAnne Sterling, EVP, Caregiver Experience, Livpact, Denver, CO
Related content
-
Patient Family & Community Engagement
The One Friend They Miss the Most: The Impact of Pet Interactions on Pediatric Experience
When his son, Brayden, passed away due to complications from a congenital heart defect, John Otten harnessed the power of his grief into action and founded Brave Like Me. Listen in as he and Amy Cielak, board member, discuss the profound impact an interaction with a pet can have on a patient, and how they
Learn more -
Patient Family & Community Engagement | Quality & Clinical Excellence
ACR Patient Friendly Animations: Empowering Patients in Radiology
This webinar will review an initiative by the American College of Radiology Patient and Family Centered Care Commission to engage patients and empower them in their care. Most patients do not have the medical knowledge to understand the appropriate use of imaging tests for their clinical condition. To help address this issue, the ACR created
Learn more -
Patient Family & Community Engagement
Driving Healthy Behaviors through Social Support: The Role of Co-Responsibility in Weight Loss and Maintenance
The effectiveness of out of hospital lifestyle interventions in healthcare is likely co-dependent on social support from involved one’s. We sought to investigate the interrelationships between patient-partner Co-responsibility, Spousal Support, and Self-efficacy and the mechanisms through which they contribute to health behaviors and outcomes relevant to weight loss and maintenance.
Learn more