Patient & Family Advisory Council Leader Workshop: Creating a Meaningful Experience on a Virtual Platform

This case study shares how Children’s Mercy conducted its annual PFAC Leader Workshop via an online platform that was meaningful and appreciated by the participants and where participants felt the content was curated specifically for them.
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Patient Family & Community Engagement
“You May Not Appreciate This Now, But You May Later”: A Qualitative Analysis of the Impact and Meaning of Legacy Interventions as Defined by Bereaved Parents
The death of a child is a significant event that affects the family system. Families of dying children need comprehensive support to help them cope with their trauma and loss. However, there is little research that examines parental preferences and grieving support needs. This study explored bereaved parent mentors’ perspectives on legacy interventions to identify
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Patient Family & Community Engagement
Research Imitates Life: Researching Within Your Lived Experience
This personal narrative article seeks to bring awareness to and provide an overview of the various aspects that come with being a lived experience researcher including the host of benefits and challenges that come with conducting research within one’s own area of lived experience.
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Patient Family & Community Engagement
Primary Care Productivity and Patient Satisfaction Community Practice: What is the Relationship?
Research has shown a consistent positive association between patient and provider experience and improved patient outcomes and safety. There is a belief that patient satisfaction and physician productivity are competing interests.
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