Original parts: Aging and reckoning with cystic fibrosis related kidney disease
Published April 25, 2018
Related content
-
Patient Family & Community Engagement
Beyond a Seat at the Table: Building the Infrastructure for True Patient and Family Partnership
Published February 25, 2026
Darcel Jackson, Manager, Patient and Family Centered Care Paige Warner, PFA Engagement Specialist Children’s National Hospital For years, patient and family engagement in healthcare has been framed as offering “a seat at the table.” While well-intended, that language often limits partnership to presence rather than influence. Our experience taught us that families don’t need a
Learn more -
Patient Family & Community Engagement
Communicating Effectively when Engaging People with Lived Experience in Mental Health and Substance use Health Research: A Qualitative Descriptive Study
Published November 12, 2025
Background. People with lived experience of mental health and/or substance use challenges and families (PWLE/F) are increasingly engaged in research, providing positive impacts. However, effective engagement can be challenging, including ensuring effective communication. This qualitative study sought to understand the communication preferences of PWLE/F who are engaged in mental health and substance use health research.
Learn more -
Patient Family & Community Engagement | Staff & Provider Engagement
The Healing Power of Human Connection
Published September 3, 2026
Complimentary – Every day, acts of compassion, kindness, and human connection shape the experiences of patients, families, and healthcare professionals. Drawing on insights from millions of stories shared around the world, this webinar explores how meaningful human interactions foster healing, build trust, strengthen teams, and create cultures where everyone can thrive. Participants will discover why
Learn more
Ask questions, share insights and connect with other experience leaders.
PX ConnectBecome a member for access to this resource and more:
- Live and On-demand Webinars and Connection Calls
- PX Papers, Case Studies and Research Reports
- PX Connect Online Community
- Discounts on Learning Programs and Events
Become a member for access to this resource and more:
- Live and On-demand Webinars and Connection Calls
- PX Papers, Case Studies and Research Reports
- PX Connect Online Community
- Discounts on Learning Programs and Events
Original parts: Aging and reckoning with cystic fibrosis related kidney disease