Lived Experiences of Cancer Patients Who Chose to Stop Receiving Treatment
The study aimed to understand the lived experience of cancer patients who abandon treatment. Four semi-structured interviews were conducted, and the data was examined using interpretative phenomenological analysis. It resulted in four superordinate themes: (i) ‘Lack of knowledge about cancer’ dealt with patients’ knowledge and perceptions about their cancer. (ii) ‘Hopelessness with oneself and God.’ (iii) ‘Distress caused by numerous cancer-related issues’ captured the challenges faced by cancer patients. The last superordinate theme, (iv) Patient dissatisfaction with physicians and treatment’ dealt with cancer patients’ interaction with and expectations from their oncologists and the medical staff. It was found that these factors played a crucial role in treatment abandonment. The decision to discontinue treatment can be attributed to patient dissatisfaction with the physician and treatment. This dissatisfaction was caused by misinformation about the disease, treatment, and distress. Since the patients were familiar with each other as they went for chemotherapy in the same hospital, the decision to abandon the treatment of one participant may have influenced the other participant. For policymakers, it is critical to understand that a ‘dissatisfied patient’ may abandon treatment at any time during their cancer trajectory, consequently affecting the mortality, morbidity, and economic burden of the country.
Related content
-
Patient Family & Community Engagement
Transforming the Human Experience through Improved Provider Communication
On the Road with the Cone Health – June 2024 by Amy Kwiatkowski Earlier this year, I had the pleasure of meeting with the Patient Experience team at Cone Health in Greensboro, NC. I had a lively conversation with the Patient Experience team about the work they are doing and are so proud of and
Learn more -
Patient Family & Community Engagement
Declining a Qualified Medical Interpreter: Helping Patients Understand the Risks
By Tamara Cardoso, UConn Health At UConn Health, we are committed to putting patient experience at the center of our care. We recognize that delivering safe, high-quality, patient-centered care necessitates effective communication at every interaction. In healthcare, ineffective communication can lead to heightened anxiety, increased stress levels, and potential misunderstandings. Importantly, it can pose significant
Learn more -
Patient Family & Community Engagement
Consumers’, Family Members’, and Health Practitioners’ Perspectives on Increasing Activity Engagement of Older Patients Admitted to Geriatric Hospital Units
The aim of this study was to explore the perspective of consumers, family members, and health practitioners on increasing patient activity engagement in a Geriatric Evaluation and Management (GEM) Unit. This study followed a qualitative phenomenology approach. Semi-structured interviews were conducted, audio-recorded and transcribed verbatim with consenting patients (n = 12), family members (n =
Learn more