Learning from Children, Young People and Families in England: Improving Experiences of Care Together with National Survey Data
Kath Evans, Experience of Care Lead – Maternity, Newborn, Children and Young People, NHS England
Janette Vyse, Deputy Head of Nursing, Patient Experience & Participation Lead, Corporate Nursing, Birmingham Children’s Hospital NHS Foundation Trust
Caroline Joyce, Assistant Chief Nurse Quality and Patient Experience
Emma James, Patient Involvement and Experience Officer, Great Ormond Street Hospital for Children NHS Foundation Trust
During 2014 the Care Quality Commission (CQC), in collaboration with the Picker Institute, ran the National Children and Young People’s Inpatient and Day Surgery Survey, specifically asking children who were 8-11 years old and 11 years plus about their experiences of care, alongside asking their parents. The survey results published in 2015 have been part of a national program building and embedding the voice and experiences of children and young people into healthcare delivery across England. This webinar will present some of the survey findings and the impact the data has had. Other initiatives include the use of the Friends and Family test with children, the establishment of a national NHS Youth Forum and the use of social media in building a community of activists in mobilizing the voices of children and young people in healthcare to directly improve experiences of care. By attending this webinar, participants will consider the impact of hearing directly from children and young people about what matters to them in healthcare and what this means for local and national improvement programs. Participants will become inspired and energized, importantly exploring the movement that is growing across England to hear and respond to.
Related content
-
Patient Family & Community Engagement
Research Imitates Life: Researching Within Your Lived Experience
This personal narrative article seeks to bring awareness to and provide an overview of the various aspects that come with being a lived experience researcher including the host of benefits and challenges that come with conducting research within one’s own area of lived experience.
Learn more -
Patient Family & Community Engagement
“You May Not Appreciate This Now, But You May Later”: A Qualitative Analysis of the Impact and Meaning of Legacy Interventions as Defined by Bereaved Parents
The death of a child is a significant event that affects the family system. Families of dying children need comprehensive support to help them cope with their trauma and loss. However, there is little research that examines parental preferences and grieving support needs. This study explored bereaved parent mentors’ perspectives on legacy interventions to identify
Learn more -
Patient Family & Community Engagement
PX Chat on PFA/PFACS: Revitalizing/Rebuilding (October 1, 2025)
12pm ET / 11am CT / 10am MT / 9am PT – Join The Beryl Institute community for an opportunity to connect with your peers on the support and resources needed to address efforts around revitalizing and rebuilding PFAs and PFACs in their organizations. Breakout discussion groups allow you to share your challenges, celebrate your
Learn more