“Just living life and then, BOOM! I have cancer”
Laurie was a working mom living in New York City when a diagnosis of breast cancer turned her life upside down. In Part 1, we learn about the role of Facebook in coping with cancer and how Laurie shared her cancer journey with her 3-year old twin girls.
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Infrastructure & Governance | Patient Family & Community EngagementStarting a Pediatric Parent Advisory Council: Overcoming Adversity
Creating a Pediatric Parent Advisory Council (PPAC) can be a transformative way to enhance family-centered care. Join us as we share our journey from the early stages of conceptualizing a PPAC, through navigating the challenges of the COVID-19 pandemic, to launching a council that has grown and thrived since August 2021. With 16 active parents
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Patient Family & Community Engagement“You May Not Appreciate This Now, But You May Later”: A Qualitative Analysis of the Impact and Meaning of Legacy Interventions as Defined by Bereaved Parents
The death of a child is a significant event that affects the family system. Families of dying children need comprehensive support to help them cope with their trauma and loss. However, there is little research that examines parental preferences and grieving support needs. This study explored bereaved parent mentors’ perspectives on legacy interventions to identify
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Patient Family & Community EngagementPX Chat on PFA/PFACS: New/Getting Started (August 6, 2025)
12pm ET / 11am CT / 10am MT / 9am PT – Join The Beryl Institute community for an opportunity to connect with your peers on the support and resources needed to address efforts around new and getting started with PFAs and PFACs in their organizations. Breakout discussion groups allow you to share your challenges,
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PX ConnectBecome a member for access to this resource and more:
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Become a member for access to this resource and more:
- Live and On-demand Webinars and Connection Calls
- PX Papers, Case Studies and Research Reports
- PX Connect Online Community
- Discounts on Learning Programs and Events