I’m going to tell you a little about myself: Illness centrality, self-image and identity in cystic fibrosis
Published November 7, 2017
Related content
-
Patient Family & Community Engagement
Building Trust in the Absence of Certainty: Community as Trust in Action
Published August 6, 2026
This personal narrative explores how trust is experienced and sustained in the context of serious illness, where uncertainty is persistent and control is limited. Drawing on the lived experience of caregiving for a child with an undiagnosed congenital diaphragmatic hernia (CDH), this personal narrative examines how trust emerges not as a matter of belief or
Learn more -
Innovation & Technology | Patient Family & Community Engagement
Transforming Patient Care: Expanding Equitable Language Access with AI Across Every Touchpoint
Published January 15, 2026
Complimentary – Clear communication is essential for equitable care, but for the approximately 25 million Americans with limited English proficiency (LEP), language remains a major barrier to safety and quality in healthcare. Though hospitals have improved clinical translation, most language access programs stop at the exam room door. Non-clinical staff—including reception and food services—often lack the
Learn more -
Patient Family & Community Engagement | Quality & Clinical Excellence | Staff & Provider Engagement
Collaborative Solutions for Managing Challenging Family Interactions
Published January 27, 2026
Discover a human-centered, multidisciplinary approach to navigating difficult family interactions in healthcare. This webinar shares how teams across all levels – clinicians, leaders, and families – developed tools, algorithms, and training processes to ensure safety, teamwork, and emotional support. Attend this webinar to learn practical strategies for creating healing environments and fostering collaboration to address
Learn more