I’m going to tell you a little about myself: Illness centrality, self-image and identity in cystic fibrosis
Published November 7, 2017
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Patient Family & Community Engagement
Amplifying Youth Voices: The Importance of Direct Pediatric Patient Feedback
Published March 12, 2026

Alexa Petta, Child Life Specialist The Hospital for Sick Children (SickKids) The collection of experiential survey data is a practice all too familiar in Patient and Family Experience (PFX). Surveys allow institutions to collect large amounts of quantifiable data through resource-lite methods, illuminating strengths and opportunities that improve the quality of care. Who does the
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Patient Family & Community Engagement
Family-Centered Care in Pediatric and Neonatal Intensive Care Units: A Systematic Review of Effects on Parental Satisfaction and Length of Stay
Published August 8, 2025
Background: Family-centered care (FCC) is essential in pediatric and neonatal intensive care units (PICUs), potentially increasing parent satisfaction and reducing length of hospital stay, but evidence of its effectiveness is inconsistent. Objective: To assess the effects of FCC interventions on parent satisfaction and length of hospital stay in PICUs. Methods: A systematic review was conducted, with 17
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Patient Family & Community Engagement
PFAC Series – PX Chat: Starting a PFAC
Published October 1, 2025

12pm ET / 11am CT / 10am MT / 9am PT – Learn the foundational steps to create a strong and effective PFAC, from defining purpose and recruiting members to setting up structures for meaningful collaboration. Join us for a three-part interactive virtual series designed to help healthcare organizations start, strengthen, and sustain Patient and Family
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