Family-centered caregiving from hospital to home: Coping with trauma and building capacity with the HOPE for Families model
Published April 25, 2018
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Patient Family & Community Engagement
Correlation between Resident Physician and Patient Perceptions of Empathy in the Emergency Department
Published November 12, 2025
Background: Empathy is essential for emergency medicine physicians, impacting patient outcomes and experiences, especially in the fast-paced emergency department (ED). However, empathy often declines during medical training, negatively affecting care. Little is known about how emergency medicine trainees perceive their empathy compared to their patients. Objective: This study aimed to explore the correlation between patient
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Patient Family & Community Engagement
“Those boxes do not hold me”: Using Narrative Health Experiences Research to Learn from Patients and Care Partners Beyond Surveys
Published August 8, 2025
Stories are fundamental to how we understand individual beliefs and experiences, as well as collective mindsets and institutional practices. Volunteered narratives are abundant, especially on the interweb. We in the health experiences research community, however, are challenged to develop effective, equitable approaches to moving beyond surveys by hearing and responding to not just dominant voices,
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Patient Family & Community Engagement
Co-Designing a Patient-Facing Version of a Mental Healthcare Pathway for People Receiving Dialysis
Published November 12, 2025
A Community Advisory Committee comprised of nine members with lived experience of kidney failure, identified the need for a patient-facing version of a mental healthcare pathway for people receiving dialysis in Alberta, Canada. Recognizing that healthcare tools to support person-centred care practices should be available in lay language, our team (comprised of Community Advisors and
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