Listening Organizations: Elevating the Human Experience in Healthcare through the Lived Experience of Patient & Families

Experts from around the world in the field of patient and family partnerships come together to explore the evolving role of Patient and Family Advisors (PFAs) in shaping the future of healthcare. This thought-provoking discussion highlights the importance of truly listening to and learning from the lived experiences of patients and families to drive meaningful change. Contributors identify current gaps in the way PFAs are utilized within healthcare organizations, noting missed opportunities for deeper engagement and collaboration. They also share their aspirations for how PFAs can be more fully integrated as essential partners in quality improvement, policy development, and system design. The conversation emphasizes the foundational elements needed to become a “listening organization”—one that actively values and acts on the insights of its patients and families. Through these shared reflections, the discussion offers a compelling vision for expanding the role of PFAs as a vital resource in advancing compassionate, patient-centered care.
Related content
-
Patient Family & Community Engagement
Engaging Children and Youth in Healthcare: A Developmental Approach
2pm ET / 1pm CT / 12pm MT / 11am PT – Current efforts to engage children and youth in hospital care lack a formal framework and engagement programs often rely solely on caregivers and guardians as proxies, overlooking their direct input. This presentation emphasizes the importance of involving children and youth directly in healthcare
Learn more -
Patient Family & Community Engagement | Staff & Provider Engagement
What Does Excellent Look Like?
This webinar explores how connection and communication directly impact the human experience in healthcare. Through the lens of “What Does Excellent Look Like?”, we’ll share a practical staff activity that uses a communication framework to identify and reinforce behaviors that reflect excellence. Participants will learn how to define effective versus ineffective communication, discuss what “excellence”
Learn more -
Culture & Leadership | Patient Family & Community Engagement
National Human Experience Movement Led by SOBREXP in Brazil
Global Headliner Webinar Series (Complimentary) – Join this webinar to discover the inspiring journey of Brazil’s National Movement in Human Experience, led by SOBREXP, the Brazilian Society of Patient Experience and Person Centered Care. Learn about the timeline, strategies, challenges, and key achievements that have shaped this groundbreaking effort to elevate the human experience. Tuesday,
Learn more