Acquiring knowledge prior to diagnosis: A grounded theory of patients’ experiences
Published June 26, 2019
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Patient Family & Community Engagement
Taking time and making space for patient and caregiver partners
Published August 8, 2025
Patient and caregiver engagement is a paramount element to ensure the voice of lived experience is integrated and prioritized in research. However, what it looks like to actually participate in authentic patient and caregiver engagement can be challenging without understanding the experience of our patient and caregiver partners. I had the honour of interviewing a
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Patient Family & Community Engagement
Engaging Children and Youth in Healthcare: A Developmental Approach
Published September 30, 2025
Current efforts to engage children and youth in hospital care lack a formal framework and engagement programs often rely solely on caregivers and guardians as proxies, overlooking their direct input. This presentation emphasizes the importance of involving children and youth directly in healthcare decisions, advocating for their lived experiences alongside those of caregivers. Attendees will
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Patient Family & Community Engagement
Family-Centered Care in Pediatric and Neonatal Intensive Care Units: A Systematic Review of Effects on Parental Satisfaction and Length of Stay
Published August 8, 2025
Background: Family-centered care (FCC) is essential in pediatric and neonatal intensive care units (PICUs), potentially increasing parent satisfaction and reducing length of hospital stay, but evidence of its effectiveness is inconsistent. Objective: To assess the effects of FCC interventions on parent satisfaction and length of hospital stay in PICUs. Methods: A systematic review was conducted, with 17
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