We’re all patients, or we’re about to be
Published June 19, 2025
Jason Wolf, President and CEO of The Beryl Institute, speaks with Jennifer Bright, MPA, President of the International Consortium for Health Outcomes Measurement (ICHOM). In this insightful conversation, Jennifer shares her personal journey and passion for transforming healthcare. Together, they explore the vital role of patient centricity and why embracing a global perspective is essential to advancing healthcare experiences worldwide.
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Patient Family & Community Engagement
Teen Volunteers are Shaping the Human Experience in Healthcare
Published July 1, 2026
This blog is part of a series on Teen/Youth Volunteer Programs in healthcare. See links at the bottom for other resources. By Jill Hilliard, Volunteer Services Coordinator Family Partners and Support Group Le Bonheur Children’s Hospital Why Teen Voices Matter “I spent my 16th birthday in a hospital room. I remember scrolling through photos of my
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Patient Family & Community Engagement | Staff & Provider Engagement
The Cost of Silence: Addressing Disenfranchised Grief in Healthcare
Published June 23, 2026
This webinar shines a light on disenfranchised grief, the often-unrecognized loss experienced by both patients and healthcare professionals. Through real-world stories and frontline insights, presenters will explore how acknowledging unseen grief can transform care experiences and strengthen human connection. Participants will learn how empathetic, developmentally appropriate care supports patients and families while also addressing the
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Patient Family & Community Engagement
From Drifting to Anchored: How Online Health Communities Can Transform Care for Complex Chronic Illness
Published August 6, 2026
This personal narrative recounts a 25-year diagnostic odyssey with Ehlers-Danlos syndrome, defined by medical fragmentation, dismissed symptoms, and profound isolation. It illustrates how Online Health Communities (OHCs) bridged the chasm between lived experience and a clinical system ill-equipped for complex chronic illness. For patients like me, these digital forums provide the peer validation, practical knowledge,
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Become a member for access to this resource and more:
- Live and On-demand Webinars and Connection Calls
- PX Papers, Case Studies and Research Reports
- PX Connect Online Community
- Discounts on Learning Programs and Events