The importance of patient engagement in the management of giant cell arteritis
Published November 2, 2022
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Patient Family & Community Engagement
PFAC Series – Webinar/Panel: Starting a PFAC
Published September 26, 2025
Learn the foundational steps to create a strong and effective PFAC, from defining purpose and recruiting members to setting up structures for meaningful collaboration. Join us for a three-part interactive virtual series designed to help healthcare organizations start, strengthen, and sustain Patient and Family Advisory Councils (PFACs) that truly make an impact. Whether you are launching your
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Patient Family & Community Engagement
Amplifying Youth Voices: The Importance of Direct Pediatric Patient Feedback
Published March 12, 2026

Alexa Petta, Child Life Specialist The Hospital for Sick Children (SickKids) The collection of experiential survey data is a practice all too familiar in Patient and Family Experience (PFX). Surveys allow institutions to collect large amounts of quantifiable data through resource-lite methods, illuminating strengths and opportunities that improve the quality of care. Who does the
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Patient Family & Community Engagement
Taking time and making space for patient and caregiver partners
Published August 8, 2025
Patient and caregiver engagement is a paramount element to ensure the voice of lived experience is integrated and prioritized in research. However, what it looks like to actually participate in authentic patient and caregiver engagement can be challenging without understanding the experience of our patient and caregiver partners. I had the honour of interviewing a
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