The importance of patient engagement in the management of giant cell arteritis
Published November 2, 2022
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Patient Family & Community Engagement
Communicating Effectively when Engaging People with Lived Experience in Mental Health and Substance use Health Research: A Qualitative Descriptive Study
Published November 12, 2025
Background. People with lived experience of mental health and/or substance use challenges and families (PWLE/F) are increasingly engaged in research, providing positive impacts. However, effective engagement can be challenging, including ensuring effective communication. This qualitative study sought to understand the communication preferences of PWLE/F who are engaged in mental health and substance use health research.
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Patient Family & Community Engagement | Staff & Provider Engagement
The Cost of Silence: Addressing Disenfranchised Grief in Healthcare
Published June 23, 2026
This webinar shines a light on disenfranchised grief, the often-unrecognized loss experienced by both patients and healthcare professionals. Through real-world stories and frontline insights, presenters will explore how acknowledging unseen grief can transform care experiences and strengthen human connection. Participants will learn how empathetic, developmentally appropriate care supports patients and families while also addressing the
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Patient Family & Community Engagement
PFAC Series – Webinar/Panel: Starting a PFAC
Published September 26, 2025
Learn the foundational steps to create a strong and effective PFAC, from defining purpose and recruiting members to setting up structures for meaningful collaboration. Join us for a three-part interactive virtual series designed to help healthcare organizations start, strengthen, and sustain Patient and Family Advisory Councils (PFACs) that truly make an impact. Whether you are launching your
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