Patient Family & Community Engagement | Global Perspective

The importance of patient engagement in the management of giant cell arteritis

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Patient Family & Community Engagement

Transforming the Human Experience through Improved Provider Communication

On the Road with the Cone Health – June 2024 by Amy Kwiatkowski Earlier this year, I had the pleasure of meeting with the Patient Experience team at Cone Health in Greensboro, NC. I had a lively conversation with the Patient Experience team about the work they are doing and are so proud of and
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Patient Family & Community Engagement

“You May Not Appreciate This Now, But You May Later”: A Qualitative Analysis of the Impact and Meaning of Legacy Interventions as Defined by Bereaved Parents

The death of a child is a significant event that affects the family system. Families of dying children need comprehensive support to help them cope with their trauma and loss. However, there is little research that examines parental preferences and grieving support needs. This study explored bereaved parent mentors’ perspectives on legacy interventions to identify
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Patient Family & Community Engagement

PX Chat on PFA/PFACS: Revitalizing/Rebuilding (April 9, 2025)

12pm ET / 11am CT / 10am MT / 9am PT – Join The Beryl Institute community for an opportunity to connect with your peers on the support and resources needed to address efforts around revitalizing and rebuilding PFAs and PFACs in their organizations. Breakout discussion groups allow you to share your challenges, celebrate your
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