Supporting the Declaration for Human Experience as Volunteer Professionals
Published February 28, 2021
Connection Calls provide opportunity for networking and idea sharing with peers. In addition to a discussion on a pre-announced topic, each call includes time for general discussion on the issues relevant to the community.
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Patient Family & Community Engagement
“Why should anyone want to make things better for me particularly?” – A qualitative exploration of Care Opinion and NHS care improvements
Published August 8, 2025
Care Opinion is an online platform which enables people to share anonymous feedback (known as “stories”) about their experiences of UK healthcare. In Scotland, this platform has official government backing, though healthcare organisations are not obliged to use it. Care Opinion staff review and edit these stories, acting as moderators. Healthcare staff are invited to
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Patient Family & Community Engagement
Beyond a Seat at the Table: Building the Infrastructure for True Patient and Family Partnership
Published February 25, 2026

Darcel Jackson, Manager, Patient and Family Centered Care Paige Warner, PFA Engagement Specialist Children’s National Hospital For years, patient and family engagement in healthcare has been framed as offering “a seat at the table.” While well-intended, that language often limits partnership to presence rather than influence. Our experience taught us that families don’t need a
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Patient Family & Community Engagement | Staff & Provider Engagement
Connecting Compassion for Patients with Health Care Worker Wellbeing
Published July 29, 2025
This webinar will explore: understanding who patients are, what they need, and how compassion can be shown; research on the benefits of compassionate care for patients and providers; and practical communication skills to avoid common pitfalls that increase suffering. By reconnecting healthcare workers with the “why” of their roles, we can enhance patient experience and
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