Standardizing the Approach to Communication and Patient Family Care in an Adult ICU
This research paper focuses on efforts to integrate principles from the Institute of Family and Patient Centered Care (PFCC) into an ICU setting. The principles included respect for family needs, participation in care and openly sharing information. The research focused on how a PFCC bundle and educational video could improve families’ satisfaction with communication, collaboration and care provided to their loved one. This report is based on research conducted at Morristown Medical Center in Morristown, New Jersey.
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Patient Family & Community Engagement
“You May Not Appreciate This Now, But You May Later”: A Qualitative Analysis of the Impact and Meaning of Legacy Interventions as Defined by Bereaved Parents
The death of a child is a significant event that affects the family system. Families of dying children need comprehensive support to help them cope with their trauma and loss. However, there is little research that examines parental preferences and grieving support needs. This study explored bereaved parent mentors’ perspectives on legacy interventions to identify
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Patient Family & Community Engagement
PX Chat on PFA/PFACS: New/Getting Started (February 5, 2025)
12pm ET / 11am CT / 10am MT / 9am PT – Join The Beryl Institute community for an opportunity to connect with your peers on the support and resources needed to address efforts around new and getting started with PFAs and PFACs in their organizations. Breakout discussion groups allow you to share your challenges,
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Patient Family & Community Engagement
Lived Experiences of Cancer Patients Who Chose to Stop Receiving Treatment
The study aimed to understand the lived experience of cancer patients who abandon treatment. Four semi-structured interviews were conducted, and the data was examined using interpretative phenomenological analysis. It resulted in four superordinate themes: (i) ‘Lack of knowledge about cancer’ dealt with patients’ knowledge and perceptions about their cancer. (ii) ‘Hopelessness with oneself and God.’
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