Patients educating health care providers on Lynch syndrome

Beyond a Seat at the Table: Building the Infrastructure for True Patient and Family Partnership

Darcel Jackson, Manager, Patient and Family Centered Care  Paige Warner, PFA Engagement Specialist  Children’s National Hospital   For years, patient and family engagement in healthcare has been framed as offering “a seat at the table.” While well-intended, that language often limits partnership to presence rather than influence. Our experience taught us that families don’t need a