Patients and families as partners in safety, quality, and experiences of care

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Patient Family & Community Engagement
PX Chat on PFA/PFACS: Revitalizing/Rebuilding (October 1, 2025)
12pm ET / 11am CT / 10am MT / 9am PT – Join The Beryl Institute community for an opportunity to connect with your peers on the support and resources needed to address efforts around revitalizing and rebuilding PFAs and PFACs in their organizations. Breakout discussion groups allow you to share your challenges, celebrate your
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Patient Family & Community Engagement
Adolescents with Cystic Fibrosis Expressing their Possible Selves through Photovoice: a Longitudinal Interpretative Phenomenological Analysis to Prepare a Peer Support Intervention for Healthcare Transitions
While the transition from pediatric to adult care has become a field of study and practice focused on preparing the adolescent to “become an adult with a chronic condition”, we are conducting participatory research to develop, implement, and evaluate a peer-support intervention aimed at supporting transition from pediatric to adult care for adolescents living with
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Patient Family & Community Engagement
Efficacy of a Communication Toolkit to Optimize Palliative Care Communication in the Surgical Intensive Unit
Data demonstrates patients benefit from the experience of specialty palliative care providers for advance care planning and prioritizing quality of life, regardless of diagnosis or stage of illness. Despite these benefits, many intensive care units (ICUs) show low utilization of palliative care. The purpose of this study was to evaluate the ability of a bedside
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