Patient & Family Advisory Council Leader Workshop: Creating a Meaningful Experience on a Virtual Platform
This case study shares how Children’s Mercy conducted its annual PFAC Leader Workshop via an online platform that was meaningful and appreciated by the participants and where participants felt the content was curated specifically for them.
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Patient Family & Community Engagement
“You May Not Appreciate This Now, But You May Later”: A Qualitative Analysis of the Impact and Meaning of Legacy Interventions as Defined by Bereaved Parents
The death of a child is a significant event that affects the family system. Families of dying children need comprehensive support to help them cope with their trauma and loss. However, there is little research that examines parental preferences and grieving support needs. This study explored bereaved parent mentors’ perspectives on legacy interventions to identify
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Patient Family & Community Engagement
Trust Remains the Foundation of my Practice
Navigating healthcare while managing the complexities of disease, especially in elderly individuals, is challenging for both patients and their families. Physicians play a crucial role as pathfinders in this journey. However, physicians often experience burnout when dealing with patients and families facing complex illnesses. This narrative highlights the characteristics that enable physicians to effectively negotiate
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Patient Family & Community Engagement
Patients’ Perceptions: A Group Differences Study Twelve Months Before and Twelve Months During a Worldwide Pandemic
The COVID-19 pandemic subjected healthcare systems’ to decreasing operational margins, enhanced regulatory scrutiny, and challenges related to patients’ expectations. Until now, there was a lack of empirical evidence studying patients’ perceptions prior to versus deep immersion into the pandemic. This quantitative non-experimental ex post facto causal-comparative study examined if and to what extent there were
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