Patient Advocates: Expanding the Landscape of Patient and Family Support
Through the voices of patient advocate contributors, this PX paper explores the important role that patient advocates, both organization-based and independent, play in supporting patients and caregivers. We hope to educate patients and family caregivers about the function and services of patient advocates so they will be better enabled to call on their services when needed. Inspired by the volunteer leaders of The Beryl Institute’s Patient Advocacy Community, Patient Advocates: Expanding the Landscape of Patient and Family Support, surfaced in recognition of the need to better inform the healthcare community about the role patient advocates play in impacting experience. The paper also informs healthcare team members of the purpose, challenges and opportunities of the patient advocate role to facilitate a better understanding of how they might partner to improve experience for patients and families.
Related content
-
Innovation & Technology | Patient Family & Community Engagement
What’s Your ETA for Improved PX? Best Practices from Emory Healthcare
When patient experience (PX) is an organizational priority, how you get there matters. Five years ago, Emory Healthcare piloted a mobile app to guide patients through their emergency department (ED) visit. Now, over 60% of their ED patients use it to view personalized wait time estimates, see the status of their test orders and results,
Learn more -
Patient Family & Community Engagement
The Use of Patient Stories as a Knowledge Translation Strategy to Facilitate the Sustainability of Evidence-Based Interventions (EBIs) in Healthcare
Patient stories are real-life experiences told from a patient’s or their family’s perspective. In the past, patient stories have served many purposes in healthcare, such as spreading knowledge, educating providers, or conveying the patient experience. Patient stories are increasingly used as a knowledge translation (KT) strategy to improve the uptake of evidence-based interventions (EBIs) into
Learn more -
Patient Family & Community Engagement
PX Chat on PFA/PFACS: New/Getting Started (February 5, 2025)
12pm ET / 11am CT / 10am MT / 9am PT – Join The Beryl Institute community for an opportunity to connect with your peers on the support and resources needed to address efforts around new and getting started with PFAs and PFACs in their organizations. Breakout discussion groups allow you to share your challenges,
Learn more