Patient Family & Community Engagement

Original parts: Aging and reckoning with cystic fibrosis related kidney disease

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Patient Family & Community Engagement

PX Chat on PFA/PFACS: Revitalizing/Rebuilding (October 1, 2025)

12pm ET / 11am CT / 10am MT / 9am PT – Join The Beryl Institute community for an opportunity to connect with your peers on the support and resources needed to address efforts around revitalizing and rebuilding PFAs and PFACs in their organizations. Breakout discussion groups allow you to share your challenges, celebrate your
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Patient Family & Community Engagement

A Passage of Advocacy and Listening: How My Name and Experiences Shaped My Purpose in Healthcare

By Typhany Morrison-Brooks I was born Madelyn Morrison without a middle name because my mother wanted me to have the space to choose one someday. I arrived a couple of months early, weighing just 4 pounds. They had already picked “Madelyn” for me, but as I lay in the incubator, I flipped myself over, earning
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Patient Family & Community Engagement

Family Support Liaisons: Improving Experience in the ED

By Lani Knutson and Daniela Milea Children’s Wisconsin’s Emergency Department (ED) was confronted with two pressing challenges: a declining Net Promoter Score (NPS) and a significant surge in patient volume. A review of post-visit survey data revealed that 56% of negative comments over a three-month period were directly related to concerns about wait times and
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