One patient’s experiences and expectations in the healthcare system: Complicated and critical illness with rare diagnosis described by his advocate
Published June 26, 2019
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Patient Family & Community Engagement
Teen Volunteers are Shaping the Human Experience in Healthcare
Published July 1, 2026
This blog is part of a series on Teen/Youth Volunteer Programs in healthcare. See links at the bottom for other resources. By Jill Hilliard, Volunteer Services Coordinator Family Partners and Support Group Le Bonheur Children’s Hospital Why Teen Voices Matter “I spent my 16th birthday in a hospital room. I remember scrolling through photos of my
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Patient Family & Community Engagement
Communication Solution: Stop (just) Training Doctors, Start Training Patients
Published November 13, 2025

Gabby Ceccolini, MS Healthcare Communication Specialist The Problem with Patient-Centered Care For decades, our healthcare system has poured time, money, and innovation into training doctors to communicate better; however, what if we are overlooking the other half of the equation? The term “patient-centered” began appearing in medical literature in the late 1980s. It wasn’t until
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Patient Family & Community Engagement
Engaging Children and Youth in Healthcare: A Developmental Approach
Published September 30, 2025
Current efforts to engage children and youth in hospital care lack a formal framework and engagement programs often rely solely on caregivers and guardians as proxies, overlooking their direct input. This presentation emphasizes the importance of involving children and youth directly in healthcare decisions, advocating for their lived experiences alongside those of caregivers. Attendees will
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