One patient’s experiences and expectations in the healthcare system: Complicated and critical illness with rare diagnosis described by his advocate
Related content
-
Patient Family & Community Engagement
Efficacy of a Communication Toolkit to Optimize Palliative Care Communication in the Surgical Intensive Unit
Data demonstrates patients benefit from the experience of specialty palliative care providers for advance care planning and prioritizing quality of life, regardless of diagnosis or stage of illness. Despite these benefits, many intensive care units (ICUs) show low utilization of palliative care. The purpose of this study was to evaluate the ability of a bedside
Learn more -
Patient Family & Community Engagement
“Not Your Father’s Heart”: How Healthcare Discrimination for Neurodivergent Patients Taught Me About the Human Experience
It is easy to assume all patients who come into a hospital for acute crisis care have a clear understanding of how their experience will be facilitated. When a patient is neurodivergent, they cannot always agree to needed intervention. This is exacerbated by the “poor timing” of questions portrayed to impact the critical care received,
Learn more -
Innovation & Technology | Patient Family & Community Engagement
What’s Your ETA for Improved PX? Best Practices from Emory Healthcare
When patient experience (PX) is an organizational priority, how you get there matters. Five years ago, Emory Healthcare piloted a mobile app to guide patients through their emergency department (ED) visit. Now, over 60% of their ED patients use it to view personalized wait time estimates, see the status of their test orders and results,
Learn more