One patient’s experiences and expectations in the healthcare system: Complicated and critical illness with rare diagnosis described by his advocate
Published June 26, 2019
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Patient Family & Community Engagement
Taking time and making space for patient and caregiver partners
Published August 8, 2025
Patient and caregiver engagement is a paramount element to ensure the voice of lived experience is integrated and prioritized in research. However, what it looks like to actually participate in authentic patient and caregiver engagement can be challenging without understanding the experience of our patient and caregiver partners. I had the honour of interviewing a
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Culture & Leadership | Patient Family & Community Engagement | Policy & Measurement | Staff & Provider Engagement
Pulse Check: Perspectives on Human Experience
Published September 19, 2025
Complimentary – This 30-minute session will explore key headlines from the most recent PX Pulse report and findings from the State of Human Experience 2025 study. Participants will engage in discussion on consumer perspectives on the current state of healthcare, review the biggest trends in human experience, and reflect on how these insights will impact both
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Infrastructure & Governance | Patient Family & Community Engagement | Policy & Measurement
Hard-Wiring Engagement: Embedding Patient and Family Voice through Policy
Published July 28, 2026
2pm ET / 1pm CT / 12pm MT / 11am PT – This session brings the webinar series together by focusing on how organizations can hard-wire patient, family, and care partner engagement through organizational policy. Participants will explore policy levers, language, and governance strategies that support long-term sustainment of Domain #5 elements and ensure engagement
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