One patient’s experiences and expectations in the healthcare system: Complicated and critical illness with rare diagnosis described by his advocate

Related content
-
Patient Family & Community Engagement
Post-Pandemic Needs of Unpaid Family and Friend Caregivers to Effectively Continue Caregiving Duties in one Northern Ontario Health Authority
The Covid-19 pandemic had a significant impact on the support networks for older adults and caregivers as health and social care systems were forced to dramatically change the ways patients and clients interacted with providers, services, and programs. In Northern Ontario, caregivers are older, caring in more intense situations, more likely to be caring for
Learn more -
Patient Family & Community Engagement
Patient Experience (PX) Giants: Pioneers and the Path Forward
This commentary pays tribute to the foundational figures in patient experience (PX) scholarship, acknowledging the “PX Giants” whose contributions have established and expanded the field’s core principles. Building upon the analysis in Foundational PX, which identified highly cited works, this piece honors individual contributors who have contributed to the scholarly foundation of PX. It highlights
Learn more -
Patient Family & Community Engagement
The patient ombudsperson’s experience of patient partnership and mutual understanding of rights
Mutual understanding between the patient and the healthcare professional can be considered a key factor of a positive patient experience in the care relationship. Mutual understanding can be promoted through patient partnership, which, in this personal and professional narrative, the author (a patient ombudsperson, known as patient ombudsman, and researcher of patient experience) describes as
Learn more