Johns Hopkins Medicine responds to COVID-19: Adjusting patient- family- and staff-centered care
Published August 5, 2020
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Patient Family & Community Engagement
Self-Medication Experience and Healthcare Trust Among Youth: A Regionally Concentrated Digital Survey in Indonesia
Published August 6, 2026
Self-medication has become a central experience for youth transitioning toward independent medical decision-making. In the digital era, young people must navigate a complex landscape of health information while seeking independent health solutions. This study investigates self-medication experiences and healthcare trust among youth, utilizing a regionally concentrated digital survey approach in Indonesia. Data were collected via
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Patient Family & Community Engagement
Making Volunteer Data Meaningful: Driving Patient Experience Outcomes
Published November 23, 2025
Volunteers play a crucial role in the patient experience, but their impact can remain unseen without the right data. In this PXLB, Roseanna Galindo shares how a simple data strategy can transform volunteer efforts from anecdotal support into measurable, strategic value. She offers quick, practical steps to start small, track what matters, and ensure volunteer
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Patient Family & Community Engagement
Building Trust in the Absence of Certainty: Community as Trust in Action
Published August 6, 2026
This personal narrative explores how trust is experienced and sustained in the context of serious illness, where uncertainty is persistent and control is limited. Drawing on the lived experience of caregiving for a child with an undiagnosed congenital diaphragmatic hernia (CDH), this personal narrative examines how trust emerges not as a matter of belief or
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