Hacking Healthcare is the Only Way Out
Dr. Grace Cordovano is a board certified patient advocate with a wealth of experience navigating the US healthcare system on behalf of herself, family and clients. In this podcast, Dr. Cordovano helps us understand what she means by “hacking healthcare” in order to move from “patient-centered care” to “life-focused care.”
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Patient Family & Community Engagement
The journey from provider to patient: Lessons learned
The lens through which one experiences a health crisis is influenced by their personal beliefs and experiences as well as by their professional training and circumstances. Parotid (salivary) gland tumors are rare. Having more than one parotid tumor is rarer still. My experience as a clinician and researcher who was diagnosed with two parotid gland
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Patient Family & Community Engagement | Quality & Clinical Excellence
Transforming Lives: A Journey of Compassion and Advocacy
On the Road with the Cystic Fibrosis Foundation – February 2024 by Stacy Palmer, CPXP I recently had the opportunity to travel to Bethesda, Maryland to meet with the Cystic Fibrosis Foundation, a non-profit organization dedicated to supporting individuals with cystic fibrosis (CF) by funding research and drug development, partnering with the CF community, advancing
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Culture & Leadership | Patient Family & Community Engagement
Culture & Leadership: The Impact of Patients and Families on Decision-Making
By Kelly Foran This is the fourth blog in a series of eight by The Beryl Institute’s Global Patient & Family Advisory Board (GPFAB). The intent of this series is to present our perspective on patients’ and families’ lived experience through each of the strategic lenses of The Beryl Institute’s Experience Framework. The Experience Framework
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