Embracing Co-Design: Engaging Patients and Families Related to the Cures Act

Northwell sought the voices of patients to co-design an updated patient portal in response to the Cures Act.
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Patient Family & Community Engagement
Adolescents with Cystic Fibrosis Expressing their Possible Selves through Photovoice: a Longitudinal Interpretative Phenomenological Analysis to Prepare a Peer Support Intervention for Healthcare Transitions
While the transition from pediatric to adult care has become a field of study and practice focused on preparing the adolescent to “become an adult with a chronic condition”, we are conducting participatory research to develop, implement, and evaluate a peer-support intervention aimed at supporting transition from pediatric to adult care for adolescents living with
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Patient Family & Community Engagement
Consumers’, Family Members’, and Health Practitioners’ Perspectives on Increasing Activity Engagement of Older Patients Admitted to Geriatric Hospital Units
The aim of this study was to explore the perspective of consumers, family members, and health practitioners on increasing patient activity engagement in a Geriatric Evaluation and Management (GEM) Unit. This study followed a qualitative phenomenology approach. Semi-structured interviews were conducted, audio-recorded and transcribed verbatim with consenting patients (n = 12), family members (n =
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Patient Family & Community Engagement
A Qualitative Study Patients Expectations of Private Hospitals
Objectives: This study was conducted to explore patients’ expectations and perceptions of private healthcare facilities, understand the key factors influencing their choice of such facilities, also identify elements that enhance patient satisfaction and loyalty, enabling the development of actionable recommendations to improve patient-centered care in private healthcare settings. Method: A qualitative study using thematic analysis
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