“Brain Fog” and Overwhelm: A Long-COVID Story
Published February 2, 2022
Mary Smith was diagnosed with COVID-19 early on in the pandemic. Since then, she has grappled with Long-COVID. In this podcast you will learn more about how Long-COVID impacts a person’s day to day life.
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Patient Family & Community Engagement
Making Volunteer Data Meaningful: Driving Patient Experience Outcomes
Published November 23, 2025
Volunteers play a crucial role in the patient experience, but their impact can remain unseen without the right data. In this PXLB, Roseanna Galindo shares how a simple data strategy can transform volunteer efforts from anecdotal support into measurable, strategic value. She offers quick, practical steps to start small, track what matters, and ensure volunteer
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Patient Family & Community Engagement
Evaluating the Net Promoter Score to improve the emergency department patient experience in real-time
Published July 17, 2025
Northern Sydney Health District evaluated whether the Net Promoter Score (NPS) survey provided deeper insights of patient experience in the ED than an existing satisfaction survey. The study concluded that the NPS was statistically and clinically significant and is a recommended metric for measuring both patient satisfaction and experience in ED’s and other hospital settings.
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Patient Family & Community Engagement
“Those boxes do not hold me”: Using Narrative Health Experiences Research to Learn from Patients and Care Partners Beyond Surveys
Published August 8, 2025
Stories are fundamental to how we understand individual beliefs and experiences, as well as collective mindsets and institutional practices. Volunteered narratives are abundant, especially on the interweb. We in the health experiences research community, however, are challenged to develop effective, equitable approaches to moving beyond surveys by hearing and responding to not just dominant voices,
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Become a member for access to this resource and more:
- Live and On-demand Webinars and Connection Calls
- PX Papers, Case Studies and Research Reports
- PX Connect Online Community
- Discounts on Learning Programs and Events