Best Practices for Collecting Self-Reported Patient Demographic Data: “Collecting data for us and not about us.”

With its focus on reducing preventable disparities in patient experience, the Patient Experience Policy Forum’s Measurement and Reporting Workgroup calls for healthcare to mandate the collection of self-reported patient data specific to race, ethnicity or primary language (REaL) and sexual orientation and gender identity (SOGI). PXPF’s recent policy statement paper describes why it is important to collect REaL and SOGI data and highlight best practices for its collection.