An experience of practitioners navigating the role of patient/caregiver

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Patient Family & Community Engagement
Adolescents with Cystic Fibrosis Expressing their Possible Selves through Photovoice: a Longitudinal Interpretative Phenomenological Analysis to Prepare a Peer Support Intervention for Healthcare Transitions
While the transition from pediatric to adult care has become a field of study and practice focused on preparing the adolescent to “become an adult with a chronic condition”, we are conducting participatory research to develop, implement, and evaluate a peer-support intervention aimed at supporting transition from pediatric to adult care for adolescents living with
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Patient Family & Community Engagement
The Impact of Learners on Patient Satisfaction in the Orthopedic Setting
This investigation evaluates the impact of learners and their post-graduate year (PGY) levels on patient satisfaction in the orthopedic outpatient clinic, an area with limited prior research. A retrospective cohort study was conducted using data from July 2020 to December 2022, involving 2,484 patients, with a 39% response rate. Satisfaction was measured via NRC Health
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Patient Family & Community Engagement
PX Chat on PFA/PFACS: New/Getting Started (August 6, 2025)
12pm ET / 11am CT / 10am MT / 9am PT – Join The Beryl Institute community for an opportunity to connect with your peers on the support and resources needed to address efforts around new and getting started with PFAs and PFACs in their organizations. Breakout discussion groups allow you to share your challenges,
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