Patients educating health care providers on Lynch syndrome
Published June 26, 2019
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Culture & Leadership | Patient Family & Community Engagement
National Human Experience Movement Led by SOBREXP in Brazil
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Global Headliner Webinar Series (Complimentary) – Join this webinar to discover the inspiring journey of Brazil’s National Movement in Human Experience, led by SOBREXP, the Brazilian Society of Patient Experience and Person Centered Care. Learn about the timeline, strategies, challenges, and key achievements that have shaped this groundbreaking effort to elevate the human experience. Tuesday,
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The patient ombudsperson’s experience of patient partnership and mutual understanding of rights
Published May 4, 2025
Mutual understanding between the patient and the healthcare professional can be considered a key factor of a positive patient experience in the care relationship. Mutual understanding can be promoted through patient partnership, which, in this personal and professional narrative, the author (a patient ombudsperson, known as patient ombudsman, and researcher of patient experience) describes as
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Patient Family & Community Engagement
“You May Not Appreciate This Now, But You May Later”: A Qualitative Analysis of the Impact and Meaning of Legacy Interventions as Defined by Bereaved Parents
Published November 13, 2024
The death of a child is a significant event that affects the family system. Families of dying children need comprehensive support to help them cope with their trauma and loss. However, there is little research that examines parental preferences and grieving support needs. This study explored bereaved parent mentors’ perspectives on legacy interventions to identify
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Become a member for access to this resource and more:
- Live and On-demand Webinars and Connection Calls
- PX Papers, Case Studies and Research Reports
- PX Connect Online Community
- Discounts on Learning Programs and Events