I’m going to tell you a little about myself: Illness centrality, self-image and identity in cystic fibrosis
Published November 7, 2017
Related content
-
Infrastructure & Governance | Patient Family & Community Engagement
Building Representative PFACs: From Formation to Sustainment
Published May 12, 2026
This webinar focuses on best practices for developing, implementing, and sustaining Patient and Family Advisory Councils (PFACs) and Patient and Family Advisors (PFAs) that are diverse, representative, and meaningfully integrated into organizational safety work. Discussion will include governance structures, recruitment, inclusion, and strategies for ensuring PFACs influence decision-making rather than operating in isolation. Learning Objectives:
Learn more -
Patient Family & Community Engagement | Staff & Provider Engagement
The Healing Power of Human Connection
Published September 3, 2026
Complimentary Headliner Webinar – 11:00 AM PT / 2:00 PM ET / 7:00 PM London – Every day, acts of compassion, kindness, and human connection shape the experiences of patients, families, and healthcare professionals. Drawing on insights from millions of stories shared around the world, this webinar explores how meaningful human interactions foster healing, build
Learn more -
Patient Family & Community Engagement
Leveraging PFACs to Strengthen Emergency Department Care
Published May 28, 2026
This webinar will describe how Mount Sinai’s Department of Emergency Medicine conceived, launched, and sustained a system-wide, Emergency Department–focused Patient and Family Advisory Council (PFAC). We will explore how the PFAC’s work moved beyond the traditional “PX silo” to influence ED operations, quality, research, digital tool development, and medical education. The session will highlight the
Learn more
Ask questions, share insights and connect with other experience leaders.
PX ConnectBecome a member for access to this resource and more:
- Live and On-demand Webinars and Connection Calls
- PX Papers, Case Studies and Research Reports
- PX Connect Online Community
- Discounts on Learning Programs and Events
Become a member for access to this resource and more:
- Live and On-demand Webinars and Connection Calls
- PX Papers, Case Studies and Research Reports
- PX Connect Online Community
- Discounts on Learning Programs and Events
I’m going to tell you a little about myself: Illness centrality, self-image and identity in cystic fibrosis