Patient & Family Advisory Council Leader Workshop: Creating a Meaningful Experience on a Virtual Platform
This case study shares how Children’s Mercy conducted its annual PFAC Leader Workshop via an online platform that was meaningful and appreciated by the participants and where participants felt the content was curated specifically for them.
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Patient Family & Community Engagement
Lived Experiences of Cancer Patients Who Chose to Stop Receiving Treatment
The study aimed to understand the lived experience of cancer patients who abandon treatment. Four semi-structured interviews were conducted, and the data was examined using interpretative phenomenological analysis. It resulted in four superordinate themes: (i) ‘Lack of knowledge about cancer’ dealt with patients’ knowledge and perceptions about their cancer. (ii) ‘Hopelessness with oneself and God.’
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Patient Family & Community Engagement
Consumers’, Family Members’, and Health Practitioners’ Perspectives on Increasing Activity Engagement of Older Patients Admitted to Geriatric Hospital Units
The aim of this study was to explore the perspective of consumers, family members, and health practitioners on increasing patient activity engagement in a Geriatric Evaluation and Management (GEM) Unit. This study followed a qualitative phenomenology approach. Semi-structured interviews were conducted, audio-recorded and transcribed verbatim with consenting patients (n = 12), family members (n =
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Patient Family & Community Engagement
The Legitimacy of the Patient Story: The Unofficial Autoethnography
While communication is the foundation of patient experience, survey data and comments are the primary source of results. The focus on data, though meaningful, reduces humans to text on reports. With a focus of autoethnography in both her baccalaureate and post-graduate studies, the author, (a fulltime patient experience professional) shares her professional focus on the
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