PX Chat on PFA/PFACS: Sustaining/Growing
12pm ET / 11am CT / 10am MT / 9am PT – Join The Beryl Institute community for an opportunity to connect with your peers on the support and resources needed to address efforts around sustaining and growing PFAs and PFACs in their organizations. Breakout discussion groups allow you to share your challenges, celebrate your successes, and discover what other organizations are doing.
Inspired by the work of The Beryl Institute GPFAB, PXPF Patient & Family Partnership Workgroup, and sparked by community PX chats, a series of monthly PX Chats focused on various stages of the PFA/PFAC engagement have been scheduled.
PX Chats are a member benefit. This event does not offer patient experience continuing education credit (PXE).
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Patient Family & Community EngagementLived Experiences of Cancer Patients Who Chose to Stop Receiving Treatment
The study aimed to understand the lived experience of cancer patients who abandon treatment. Four semi-structured interviews were conducted, and the data was examined using interpretative phenomenological analysis. It resulted in four superordinate themes: (i) ‘Lack of knowledge about cancer’ dealt with patients’ knowledge and perceptions about their cancer. (ii) ‘Hopelessness with oneself and God.’
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Patient Family & Community EngagementPX Chat on PFA/PFACS: New/Getting Started (August 6, 2025)
12pm ET / 11am CT / 10am MT / 9am PT – Join The Beryl Institute community for an opportunity to connect with your peers on the support and resources needed to address efforts around new and getting started with PFAs and PFACs in their organizations. Breakout discussion groups allow you to share your challenges,
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Patient Family & Community EngagementTailoring Communication for Families: Enhancing Understanding and Reducing Stress in Pediatric Care
By Emily Revelle Communication is the basis of all things we do in healthcare. When done well, it allows us to present vital information to the family, work well together as a medical team, and establish psychological safety. When done poorly, it will do the opposite and can increase mistrust of the medical system. What
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Ask questions, share insights and connect with other experience leaders.
PX ConnectBecome a member for access to this resource and more:
- Live and On-demand Webinars and Connection Calls
- PX Papers, Case Studies and Research Reports
- PX Connect Online Community
- Discounts on Learning Programs and Events
Become a member for access to this resource and more:
- Live and On-demand Webinars and Connection Calls
- PX Papers, Case Studies and Research Reports
- PX Connect Online Community
- Discounts on Learning Programs and Events