Patient Family & Community Engagement

Easy to Give, Hard to Receive

Risa Hanau, LCSW, is an expert in caring for those at end-of-life. She also is a natural “giver” who is quick to support a loved one in need. Facing her own rare disease diagnosis and the physical challenges that come with Ehlers-Danlos, however, required she take a new journey of asking for help. Join us for this compelling and raw story of Risa’s journey to accepting support while coping with a rare disease.