Easy to Give, Hard to Receive
Published April 25, 2022
Risa Hanau, LCSW, is an expert in caring for those at end-of-life. She also is a natural “giver” who is quick to support a loved one in need. Facing her own rare disease diagnosis and the physical challenges that come with Ehlers-Danlos, however, required she take a new journey of asking for help. Join us for this compelling and raw story of Risa’s journey to accepting support while coping with a rare disease.
Related content
-
Culture & Leadership | Patient Family & Community Engagement
Ambulatory Care Community Connection Call – Rounding Best Practices
Published October 29, 2025
While rounding is a well-established practice in acute care, ambulatory leaders continue to voice the need for similar approaches in outpatient settings. Rounding, whether with patients, staff, or both, can play a vital role in improving communication, engagement, and overall experience. Join the Ambulatory Care Community for a conversation on current rounding practices in ambulatory
Learn more -
Patient Family & Community Engagement
Co-Designing a Patient-Facing Version of a Mental Healthcare Pathway for People Receiving Dialysis
Published November 12, 2025
A Community Advisory Committee comprised of nine members with lived experience of kidney failure, identified the need for a patient-facing version of a mental healthcare pathway for people receiving dialysis in Alberta, Canada. Recognizing that healthcare tools to support person-centred care practices should be available in lay language, our team (comprised of Community Advisors and
Learn more -
Infrastructure & Governance | Patient Family & Community Engagement | Policy & Measurement
Hard-Wiring Engagement: Embedding Patient and Family Voice through Policy
Published July 28, 2026
2pm ET / 1pm CT / 12pm MT / 11am PT – This session brings the webinar series together by focusing on how organizations can hard-wire patient, family, and care partner engagement through organizational policy. Participants will explore policy levers, language, and governance strategies that support long-term sustainment of Domain #5 elements and ensure engagement
Learn more
Ask questions, share insights and connect with other experience leaders.
PX ConnectBecome a member for access to this resource and more:
- Live and On-demand Webinars and Connection Calls
- PX Papers, Case Studies and Research Reports
- PX Connect Online Community
- Discounts on Learning Programs and Events
Become a member for access to this resource and more:
- Live and On-demand Webinars and Connection Calls
- PX Papers, Case Studies and Research Reports
- PX Connect Online Community
- Discounts on Learning Programs and Events